Brave

Hi it’s me Sarah I was brave during surgery they made me float. and they gave me a treasure box stuff, and my sister got treasure box stuff also. I had a semi good day.  I am okay today.

Ten Hours To Procedure

Well in Ten hours left till procedure time Sarah and Brie are both sleeping. Jaimie is still fighting her sleep trying to stay up. I asked sarah if she was alright she replyed yes mom and continued with it’s Finally! happenening, today and I am happy! I asked are you scared she said yes but I am happy it’ll finally be gone and dealt with and it will be over. With a big hug I gave her a kiss and with tears begining to fill in my eyes that she could not see I said awwww honey. Yes you are right. We’ll be alright.  Everything will be gone and we’ll pull thru in the end. We will manage through this you are right. Together embraced we held each other and fell asleep. We will be getting up early tomorrow to begin preparation for the procedure as we have more medicines to give before she undergoes treatment and the procedure. Sarah is resting but is happy and calm and happy this whole ordeal will soon be gone.

My Heart(The Song)

O my heart My heart, my heart My heart…..

My heart is changing My heart is changing

O my heart My heart,my heart My heart is beating

My heart is beating My heart is changing For you

My heart is changing for you For me

My heart is changing everyday for you Each day it changes in a different way Changing for you and for me

Written By My Daughter Sarah Age 6

Bingo Night

Hi it’s me Sarah.  I went to doctor’s much of the day today and then I read the numbers at bingo. I had pizza and got gummy worms and soda. I also ate cookies and water.  I got to play with my sister’s also. I love my entire family and especially my mom and sister’s. I love my dog Ginger but she died, also I love all my pets. I have a turtle. I always care for my family and all my pets. I enjoy my time with them. Well I am tired and need to go to bed now. So goodnight.

Exhaustion And Crankyness😭😭

Well guess that I was wrong. Apparently with the field trip today Sarah was all fussy with her not feeling well.  When we got home round about 7pm she went right to do homework and then straight to bed with some tears. So I take it she really wasn’t feeling great and was quite exhausted. So Now she is getting her beauty rest and do not expect her to be writing tonight. Maybe tomorrow.  Sorry.

 

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Aside

Well today Sarah’s temperature was normal again. They had a field trip to go see their high school buddies today and learn how to do certain types of measurements. Sarah is still at school currently but I am sure that we will hear all about it when she finally gets home. She is still acting a bit edgy but was so excited to go to the high school.

Field Trip Day

Sarah’s Long Day Today

Sarah has had a long day today. She is currently feeling much stress as she fights infections, and fevers tonight. She is currently sleeping and is sick. We are hoping for the best with things. She is happy that surgery was not today as she was not feeling good. She was also happy to be able to have her very own blog to talk to everyone and let everyone know how she is doing. We are hoping that everyone who has been following on Facebook the past 3 weeks continues to follow here and that people are just as willing to help Sarah out with some donations so that we as a family can help fund for any medical expenses and also buy Sarah some learning stuff to teach her about safety and protection and special care of her two serious medical differences. She was really happy to share her first journal with you tonight. Thank you.

Jen

I’m Sad

Sarah at age 7

Sarah at age 7

Hi it’s Sarah.

I am feeling sad and I am  mad.

I am hoping  that someone will give me some money.

I need help please give some money.

I am sad I could cry about  me getting surgery .

Well goodnight until tomorrow.

Thank you for the prayers. ❤

PS… I am happy it’s not today.